Helpful Links and Resources
Office of
Health Care Quality
Maryland
Board of Nursing
Service Coordination, Inc.
ADVOCACY
- The Center for Self-Determination
– A clearinghouse, training and
technical assistance source on Self-Determination in the United States
and other countries. The Center is devoted to working within the public
and private sector to move power and authority over resources directly
to individuals with disabilities, families and allies.
- Freedom Clearinghouse — Working
to help people move from institutions into the community.
- Inclusion Daily Express — Daily
review of disability rights and the movement toward full community
inclusion and self-determination.
- National Council on Independent Living
- NCIL advances independent living and the rights of people with
disabilities through consumer-driven advocacy.
- Partners in Making Your Case — A
self-study course designed to help people with developmental
disabilities and their families create positive change through advocacy.
- The Riot! – An e-newsletter for
self-advocates. The focus is to help people live the life they want
with the support they need. It also covers
life topics, such as dating, health and everyday fun.
EDUCATION
- From Emotions to Advocacy —
Helps parents advocate for their children with disabilities. Includes
articles, checklists, and resources.
- Parent Advocacy Coalition for
Educational Rights (PACER) Center — PACER's mission is to improve
and expand opportunities that enhance the quality of life for children
and adults with all disabilities and their families.
- U.S. Department of Education, Office
of Special Education — Education resources, research, statistics,
publications, and more.
EMPLOYMENT
- Division of Rehabilitation Services -
Supports the employment and economic independence of people with
disabilities.
- Job Accommodation Network — Free
consulting service that provides information about job accommodations,
ADA, and the employability of people with disabilities.
- Office of Disability Employment Policy
(ODEP) — An agency within the US
Department of Labor, ODEP provides national leadership to increase
employment opportunities for adults and youth with disabilities while
striving to eliminate barriers to employment.
- Training and Technical Assistance for
Providers — Assisting community-based service providers to
develop their programs from segregated work and non-work options to
competitive employment opportunities.
- WorkSupport.com — Information,
research, and resources about work and disability issues.
FAMILY
- Family NET Works — Offers
opportunities for Maryland families to interact with each other, posing
questions and offering advice. Information on family support services,
general family interest topics, disability and generic resources, and
links to other sites.
- The Parents' Place of Maryland —
This organization's purpose is to serve the parents of children with
disabilities throughout Maryland. Publications, resources, and
workshops are available.
- Planned Parenthood of New England
– Relationship, sexuality & decision-making education for
adults with developmental disabilities. This curriculum, the first of
its kind in the country, is designed for self-advocates and staff to
teach a sexuality education series together as a team.
- Sexuality Education of Children and
Adolescents with Developmental Disabilities — Policy statement
from the American Academy of Pediatrics.
FUTURES/FINANCIAL PLANNING
- Easter Seals – Features
“With Open Arms: Embracing a Bright Financial Future _for You and
Your Child”- A New Financial Guide for Parents of Children with
Disabilities and Other Special Needs.
- The Maryland Developmental
Disabilities Council — Advocates for public policy and supportive
practices and opportunities that promote the full inclusion of all
people with developmental disabilities in community life. The site
includes the “Planning Now” guidebook about Futures and
Estate Planning.
- GovBenefits — A federal site
that helps determine what government benefits you or your family member
are eligible to receive.
- Social Security Administration
Information — Articles, publications, forms, and other
information regarding disability benefits.
HOUSING
- The National Home of Your Own Alliance
— Creating housing and support opportunities that people choose
and control.
- U.S. Department of Housing and Urban
Development's Homes and Communities — Offers a variety of
information about housing and also has a section specific to people
with disabilities.
MENTAL HEATH
LOCAL & NATIONAL
- American Association on Intellectual
and Developmental Disabilities (AAIDD, formerly AAMR) - AAIDD is the
oldest and largest interdisciplinary organization of professionals (and
others) concerned about intellectual and related disabilities.
- Americans with Disabilities Act (ADA)
Technical Assistance Program — Provides information, training,
and technical assistance.
- The Arc of the United States —
Resources and information from the national headquarters. News from
Capitol Hill, links to state and local chapters across the country, a
discussion board, and more.
- Consortium for Citizens with
Disabilities — A coalition of national disabilities organizations
working together to advocate for national public policy about issues
for people with disabilities.
- Developmental Disabilities
Administration (DDA) — Provides
information on provider agencies, resource coordination, how to apply
for services, and other useful information for Maryland residents.
- The Disability History Museum —
Promotes understanding about the historical experience of people with
disabilities by recovering, chronicling, and interpreting their
stories.
- Human Services Research Institute
(HSRI) — HSRI works to develop support systems for children,
adults, and families, and enhances the participation of individuals and
their families to shape policy and service practices.
- National Council on Disability —
An independent federal agency that makes recommendations to the
President and Congress on issues affecting Americans with disabilities.
- State of the States in Developmental
Disabilities — Updated guide by David Braddock, including charts,
tables, profile revenue, and trends for long term services and supports.